When your child falls chronically ill, life changes. It becomes more solemn, colors seem a little less vibrant, laughter becomes harder to find. We do our best to practice gratefulness, we try to mention three things we are thankful for every day, and honestly, there's a lot. But we're also extremely weary, as our little one refuses to sleep. We research, medications, supplements, detoxing baths, and when theres a slight remission, we wonder which one worked. We have to fight with doctors to get the right tests and treatments. We have to protect our other child as this illness causes real psychotic breaks which can be extremely violent. Every day is a soul crushing battle between despair and hope.
Today, we went hiking at Cadron Settlement. It was a HARD won battle just to get there, as our little one did not want to go. We actually got a number of new bruises on ourselves just getting her in her car seat. But, oh how it was worth it! It was so cold, but for some reason, cold seems to help her, perhaps its just fighting the inflammation that threatens to consume her brain. I don't know, but I'm just grateful. Both children ran and explored and squealed with delight at collecting acorns and finding bridges to cross. For the first time in a long time, our kids were able to just be kids. It was glorious! I don't know how long we'll see this side of her, it may be a couple of hours, maybe a couple of days. But we glimpsed the simple delight of childhood today, and we will rejoice!
My prayer is that the kids will remember these times, fleeting as they are.
Today, we went hiking at Cadron Settlement. It was a HARD won battle just to get there, as our little one did not want to go. We actually got a number of new bruises on ourselves just getting her in her car seat. But, oh how it was worth it! It was so cold, but for some reason, cold seems to help her, perhaps its just fighting the inflammation that threatens to consume her brain. I don't know, but I'm just grateful. Both children ran and explored and squealed with delight at collecting acorns and finding bridges to cross. For the first time in a long time, our kids were able to just be kids. It was glorious! I don't know how long we'll see this side of her, it may be a couple of hours, maybe a couple of days. But we glimpsed the simple delight of childhood today, and we will rejoice!
My prayer is that the kids will remember these times, fleeting as they are.
No comments:
Post a Comment